People with Ehlers-Danlos Syndrome often identify themselves as zebras.
“When you hear the sound of hooves think horses, not zebras”
This phrase is taught to medical students, meaning look for the more common diagnosis, not the most rare and surprising diagnosis.
Many of us spend years suffering a plethora of multi-systemic symptoms before a diagnosis is made. Too often a very late diagnosis.
Many medical professionals forget that zebras do exist therefore getting a diagnosis and treatment can be more difficult for sufferers of rare conditions.
Ehlers-Danlos syndrome is considered a rare condition and those with EDS are known as ‘medical zebras’.
When you see a Zebra, you know it’s a Zebra through the unique stripes. No two zebras have the same stripes, just like no two people with EDS are the same. We all have different symptoms, different types and different experiences.
Just because we are rare, does not mean we are not there !